Patient and Public Involvement in research involves patients and members of the public becoming actively involved in the research process by joining a research team and influencing the research project.

Patients or members of the public who are involved in research are not subjects of the project, instead they bring a valuable patient/public perspective to the research process.

A New study by King’s College London indicates that involving patients in the design and implementation of research programmes increases the likelihood of studies recruiting to target.

The RDS can help with patient involvement: Experienced advice on how to involve patients in the design and implementation of research programmes comes as part of our support package to researchers.  Request support here

Many research funding streams now see the benefit of PPI and require it to be an active part of the project. The RDS SC also recognises the fundamental importance of PPI in research and has appointed a dedicated PPI Officer to directly support researchers and patients, or members of the public who wish to get involved in research.

There are three levels of involvement described in the table below along with an example of what involvement could look like at each level.

For further information on PPI please see the links on the right.

Consultation: Asking people who use your services for their views on your research to help inform decision making. Commenting on the ability to understand lay summaries.
Collaboration: Ongoing partnership with Members of the public throughout the course of the research project. A member of public on the project steering group.
User-Led/

User Controlled:

Members of the public lead the research and are in control of the research. This is often, through a community or voluntary organisation Writing information sheets for patients.